I would like to contact other spina bifida parents to know how they manage and cope with looking after a child. I use crutches to walk in and out of the house. I have an 18month old daughter.

-- Anonymous, August 17, 2003

Answers

Hi Melanie

Like yourself I have Spina Bifida, I have a beautiful baby girl she was born by c section in January. I have been very fortunate in having the help from my partner and mum with looking after her, I try to do most of it myself but as she is getting older I am finding it more difficult as she is not as light as she used to be!!

Lisa & Macie

-- Anonymous, September 17, 2003