My 12 year old has osteonecrosis in her ankle does anyone out there know anything about this?

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My 12 year old daughter has osteonecrosis of the ankle. A MRI revealed she has two spots on different bones of the ankle. It has been six months since her diagnosis. She is still having pain in her ankle, and for the last two months she's been complaining that it hurts from her ankle to her knee. When this happens she has a very hard time walking. She sees her orthopedic surgeon next week. I am trying to find out if there is anyone out there who has a child with ON in the ankle, or a specialist that can give me some information on this. Thank You.

-- Robin Batson (www.wabatson@excite.com), November 15, 2004

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